“You
drive now?” ask Jerry Hsu, a friend/co-worker who saw me leaving work with keys in my
hand.
“Yup, I’ve been
driving for 1 ½ years,” I said.
“You sold your Celica.”
“Yes, to my mom. I could not work the clutch with my left leg.”
“You still have trouble
with that.”
“No so much now, but
when I started driving, I did. Even now an
automatic just gives me one less thing to think about.”
“You are very lucky,”
he said, “I had a friend that survived one surgery, but he did not survive the
second. You are lucky.”
“I know. I keep reminding myself that each day is a gift.”
I need to remind myself of
life’s gifts because I quickly and often obsess about my losses or what I could be
doing differently. My awkwardness on my left
has improved a lot, but every time I do something that reminds me of it, type, sit down,
etc. It reminds me of my loss.
Then there’s the
question of drugs. I’ve only reduced my meds a little since the surgery. My mother keeps saying – “your quality of
life would be so much better if you could reduce them more.” Just when I feel like I might be ready to try, I’ll
have “an aura” like last Monday – like a pre-seizure that makes me think
maybe it’s not time to change or worse…obsess that I might be getting sick.
Then there’s the
obsession about how I’m not as ‘quick’ a thinker as I used to be. “How many reams of paper will a 6,000 page
printer cartridges print?” used to be a very easy question. Now it takes me several minutes to break down the
question in my head.
I obsess about every change
in how I feel. Am I too tired? Is my arm or leg getting tense? Am I feeling ‘whosy?’
I am often paralyzed by all
of this when I try to think more than one day ahead. What
scares me is my grandmother – a very strong and rational person – slowly lost
her sight as she got older. And when I’d
visit, that is what she’d always talk about, “if only I could see again.” At the time, I wished she could ‘see’
passed her situation because I thought she would live a much happier life. It was not to
be.
So here I find myself in the
same situation. I am 38 not 72, but the
concept is feels the same. Whoa is me.
To try to grow a little, I
have been going to some ALAN meetings. These
are for relatives of alcoholics, but also focus on a ‘spiritual awakening.’ I’m
learning is to ask for guidance from (g-d, a higher power).
I see that I do not control ‘what happens,’ but I do control my
response. And I don’t mean I am always
reactive, it more a realization that things I do not understand make some things happen. I’m not with satisfied ‘it was just
random’ or ‘I controlled the situation to that end.’
So when I get really
frustrated, scared or worried, I ask for guidance. This
is a new to me so all I can report now is it has helped me.
--------------------------------
Since it’s been a lot
time since I’ve written, let me just catch you up on some news. In September I started working 30 hrs/wk. This is going well, but has cut into my time with
the kids.
My two-year follow up MRI
results were: “Dr. Black says the scan looks great and he hopes you are feeling as
well as it looks. Fondly, Donna for Dr. Black. Give our best to Abi.”
Abi is now in the middle of her second year of medical
school at OU and study hard for the Medical Boards. She
will be moving back to Dayton in September.
Day-to-day life is very
good. Hana is great. She does gymnastics twice
a week and enjoys drawing and school. Zachary
has been sick, first with one thing or another for too long…maybe he is on the mend
now. One more doctor visit to go. His Barmizva is already planned for March 1, 2003 in Yellow Springs.
I went to California
for the first time to visit my bother in Oakland in December. I
did okay and I was very happy to see him and where he lives.
He lives in a warehouse that has several rooms organically built into the
space. He is the ‘land lord.’ This was my first trip alone since my last surgery.
Abi’s dad died in
October suddenly. He had just written me two
days before wishing me a happy and health Jewish New Year.
He had had health trouble 12 years ago and retired. We had never seen him so happy. He pursued many different hobbies, art, music,
programming. He’d always remind me
– in his way – that every day is a gift.
----------------
So, as I move into 2002,
this is the first year I did not even think about New Year’s resolutions. Getting through the next week is about all I can
think about some times.
Thanks for caring.
Love and warm wishes,
Dan