Well in my last update I said, “The only known thing is I do not have a confirmed explanation for my current condition.” 

Now two and a half months later, I know from an MRI and PET, that I have a high grade Oligo.  My first was a low grade and my second was a ‘higher’ low grade, but now it is a full-bore fast growing tumor that will probably need sledge hammer treatment….

We have sent all the data to in Boston Dr. Black for review. Hopefully he will have something positive to say.

In the mean time, Dr. Simkins, the person at Kettering , said we need a nero-oncologist.  Go to James Cancer Center in Columbus or Cleveland Clinic, but leave the area was his advice.

He guesses that I might need chemo and radiation.  That I will have to figure out with the oncologist.  Abi found that this tumor is not a ‘die tomorrow,’ type but its expectancy (for what its worth) is 3-5 years….

So where does this leave me?  Oddly where I started.  Asking the important life questions:

• How do I want to spend my time?
• What is most important to me anyway?
• How can I connect more with my family?

And trying to find the right doctor to give me the best care possible.

Trying to live in the moment.

Another thing from the past, some of you may remember I saw an Amish healer named Solomon Wickey.  Well, he gave me hope at the time and we wrote about it on the website.  The Google search engine has found it.  If you type his name into the search, ours is the fourth entry. More than 20 people have written me, asking what I thought of him or to talk, etc.  Anyway, three people have written me in the last week!  Abi said maybe you need to go see him again….so I wrote him a letter (the only way to contact him) and asked to see him.

That’s all is my story I want to get into now.  More as I know more.

With warmth, love and blessings,